Sunday, August 22, 2010

How cool is that?!

Camp Kesem: Children of Cancer Patients get a week of care-free, joyous living
(Deseret News, August 21, 2010)

EMIGRATION CANYON — The kids, more than 12 of them, are trying to tie themselves into a single knot, holding hands and laughing like crazy as they step over legs and duck under arms.  It's an exercise in joy, very unlike some of the knots they've been tied in by life.  This is Camp Kesem, a free weeklong summer camp for children who have or had a parent with cancer. The Hebrew word kesem means magic. And the magic here is that cancer does not get center stage. Childhood does.  It's also a place where the counselors not only volunteer but raise the money to pay for everything, relying heavily on the goodwill of individuals, their own ingenuity to come up with clever ideas to attract money and new skills such as grant writing.
BYU student Brian Hansen leads a camp song at Camp Kesem. 
The camp is for children of people who have or have had cancer.

It's about kids — the campers, who are ages 6 to 13, and the counselors who are college age but definitely kids at heart. Camp Kesem is a decade-old national organization with camps attached to 23 universities, says its national program director, Sigall Rave, who was visiting the camp for a couple of days. Rave and a colleague between them visit every camp every summer.

Spencer Ginther climbs onto Camp Kesem counselor Adam Johnson's
back during an activity for Camp Kesem on Thursday.

In Utah, it's Camp Kesem BYU, with all the counselors from BYU, except two who are now doing post-graduate work at the University of Utah. Founded at Stanford University, Camp Kesem not only reaches out to the kids, whose struggle with a parent's cancer is sometimes not well-understood or even noticed outside the family, but it gives the counselors the leadership skills that classrooms alone can't, Rave said.

"We are making a wonderful new group of leaders," she said.

For campers Jolly Rancher, Wolverine and Snoozers, it's all about having a grand time with great friends. In real life, they are Stephanie Held, 13; Brian Chase Raines, 10; and Kanyon Fox, 10. Here, though, both campers and counselors choose the names they want and bury themselves in delights like Snoozer's beloved "Ride That Pony" game or Wolverine's favorite pastime, swimming. He says he doesn't make friends easily at school, but here, he has so many friends.

Campers participate in an activity called the "human knot" at Camp Kesem on Thursday.

And at night, as they wind down, the campers discuss their days in playful terms that may become serious or not. Ask Jolly Rancher three things that would make life perfect and she answers a house that never gets dirty, living underwater and a day spent in the world of her favorite book or movie. Ask one of the children about heroes, though, and you might hear it's "my mom, but she died of cancer last year."

It's held at Camp Kostopulos, and the kids enjoy all that means, from the knotted ropes course to theater in the "bear den" yurt, arts and crafts, sports and swimming.  There are professional advisers, but mostly it's the kids and college-student counselors, who each underwent 30 hours of intensive training, countless sessions of "how will we raise enough money" and this year, with the economy tight, some hard decisions on how many kids they'd have to turn down.  In the end, says Ryan "Boo-yah" Willis, they took 40 and had to turn another dozen away.

Willis headed the recruiting, and they had reached their cap in two weeks. Pumpkin — actually BYU exercise physiology major Alicia Chidester — not only chaired this year's camp but did most of the grant writing, too. She knows all the kids by both their names, and if she slips and uses the real name, she has to kiss a tree. Monday, she kissed seven trees, but her lips have been bark-burn free for two days now.  Her uncle, counselor "Goose," aka Kyle Hartman, a science major, was a Scout whose mom had skin cancer. The camp's a natural fit for him, he says, and the joy comes in watching shy kids "bloom like a flower" by week's end.  Another counselor, Sully, aka Cameron Curtis, is back for a third year because it really is "kesem" or magic.  It's a camp with traditions, like the fact the male counselors let the boys shave their heads. Or the camaraderie and laughter that run nonstop.

For more on the camp or how to donate, visit www.campkesem.org/byu.

Thursday, August 19, 2010

Camp Kesem - Day 3! Wild West Day

We are really missing the kids and enjoying how quiet it is around here!  You know how much easier it is to keep a house clean(ish) when there are only two kids here?!?  We've been working hard to get their bedrooms done while they are gone and have made good progress.  : )

http://www.youtube.com/watch?v=LQ5LZoHQXSQ

Wednesday, August 18, 2010

Kesem - Day 2!

More fun from Kesem!  Resolution isn't great, but you can see the kids.  : )  We miss them!

http://www.youtube.com/campkesembyu#p/u/4/zLkLBM4I1cc

Camp Kesem!

We dropped Maddie and Isaac off at Camp Kesem yesterday.  It is eerily quiet around here and we miss them, but I know they are having a great time!  Camp Kesem is a summer camp for kids who have a parent who has had cancer.  I am so glad I heard about it and got them registered!  We don't pick them up until Saturday and we can't contact them, so indulge me as I post anything I can from their Twitter page this week!  Here is the first video clip.  Watch closely and you'll see them both!

http://www.youtube.com/watch?v=nvwk871qes0

Monday, August 16, 2010

"Cancer survivors keep aspiring to reach new heights" - Salt Lake Tribune, August 15, 2010

Snowbird • Determination being a trait of cancer survivors, 79-year-old Naomi Sattelberg challenged herself Saturday to hike to the “Survivors at the Summit” celebration atop Hidden Peak from Snowbird’s base in less than four hours.  She beat her deadline, just as she has beaten breast cancer for the past 15 years.  “I’m slow and every year I get slower,” said the Olympus Cove resident, a regular at the annual Cancer Wellness House fundraising event, now in its 14th year.  But with moral support from friend Melissa Carter, Sattelberg pushed herself to make the 3,000-foot ascent on a bluebird late summer day.  “This [hike] shows that you need to take time to accomplish something challenging and to fight difficult things that come up,” she said, displaying an attitude common among the cancer survivors and family members assembled on the mountaintop. “Every year, it’s very touching.”

Fisher Goble, 9, provided the most touching moments Saturday. He read from “A Book About My Dad,” which he wrote and gave to his father, Ed, just before one of the nine surgeries Ed has undergone in the past year after being diagnosed with skin and kidney cancer (following a stroke).  “My dad is a very hard worker … My dad is very strong …My dad loves to hunt and fish … My dad, he is a fighter, a warrior and a survivor,” the Woods Cross boy said. “He has the heart of a champion. I love you dad. Love, Fisher.”

A mountain of a man who made a name for himself as an arm wrestler, Ed Goble was not the only one wiping away tears when his son finished.  “I walk around proud as a peacock with that book,” he said, supporting his weight with a cane as he went on to recite a lengthy poem about never giving up. Through it all, Goble added, he has learned “to appreciate every day, every minute, because all we have is time. When the kids want to go fishing for an hour, I take them fishing for an hour. Time is so important — what we do with it and who we spend it with.”  His message clearly resonated with a sizable crowd gathered on the peak, surrounded on three sides by nearly 1,000 fluttering yellow flags purchased on behalf of people touched by cancer.

Some flags bore the name of the famous — Utah businessman Larry H. Miller, singer Sheryl Crowe, cyclist Lance Armstrong, actor Patrick Swayze. Others named everyday people. A few simply paid homage to “Mom” or “Friends,” “Memories” and “Life.” Still others gave thanks, such as one to “All Who Are Working for a Cure.”

Kim Ulmer, 39, of Bountiful, spent part of the ceremony chasing after her toddler, McKinley, just 5 months old — the youngest of four children — when Kim found out she had breast cancer.  “Cancer changes your perspective and teaches you what’s important,” she said. “When I was diagnosed, I realized that all that mattered was my family. You think about what you’re spending your time on.”   The Cancer Wellness House helped Ulmer and her young family to come to grips with her disease, which seems to be in check now after chemotherapy treatment that ended in mid-May.

It also has helped Salt Lake City resident Val Callanan, who has lived with cancer for 12 years but recently lost a cousin to multiple myeloma.  “This is emotional,” said the frail but hardy white-haired woman. “It never gets easier. You’re just thankful for every day.”


Cancer survivor Ed Goble hugs his wife, Connie, while receiving a standing ovation from the "Survivors at the Summit" crowd after sharing the story of his fight to beat cancer. Goble and his family are involved in programs offered by Salt Lake City's Cancer Wellness House, sponsor of the 14th annual fund-raising hike to the top of Snowbird's Hidden Peak.  (I know Ed from the group I attend.  This was a very touching moment, my heart goes out to him and his family!!!)

Sunday, August 15, 2010

Survivors at the Summit

We spent the weekend up at Snowbird.  It was AWESOME!  We went up for a fundraiser for the Cancer Wellness House, Survivors at the Summit.  The CWH has been such a great thing for us.  Mat and I have gone to the groups, gained many valuable insights and some good friends there, so we wanted to support them in this way.  The event includes a hike/tram ride up to Hidden Peak (11,000 feet elevation) where they have a Celebration of Life program.  They set up hundreds of yellow tribute flags, flags that have names and messages on them--what a sight!

Mat took Isaac, Brooklyn and McKinley up the mountain on the tram.  Mel and her family, me and Maddie decided to hike.  It's "only" three miles from the lodge to the peak.  However, I underestimated what an elevation gain of 2,500 feet would mean.  It was steep all the way up, a tough hike, but we did it!  Maddie was such a trooper.  She never complained or got upset, she just kept going with a determination that I've never seen.  We would stop and rest when it was needed, but it was amazing to see how she pushed through it.  : )  Here are some pictures:

Brooklyn and Isaac exploring the mountainside.


See how far we've come? 
This is on the Ridge Trail as we make our way to Hidden Peak.


My awesome family!  Just so you know, Brooklyn doesn't always look like dracula.  They were painting faces at the lodge and that is what she picked (naturally!).  We had a great weekend.  : )

Tuesday, August 10, 2010

Here's the link!

Thanks to Candace's husband who recorded the national anthem for the Tough Enough To Wear Pink night at Day's of 47 Rodeo.  It's a little blurry, but you will get the idea.  It was really fun!

http://www.youtube.com/watch?v=0oP0NNX7YFQ

Sunday, August 8, 2010

40 feels just like 39

For my birthday, I wanted to take Mat on a date to the new Family History Library downtown.  They close at 2 p.m. on Saturdays.  What?!  So we sat at the fountain on the plaza and talked and watched people.  It was perfect!  Then we went to Epic in Midvale and got awesome salads because that is all we can afford at Epic.  : )  Kari and family came over for dinner and treats tonight, then Mat "serenaded" me for my birthday.  He sang "Grow Old With Me" by John Lennon, one of my favorite songs.  The family has been awesome today!


My hair is growing in earnest.  It's probably a quarter inch long and thickening up nicely.  But it's not the right color.  See my twin?  Her's is red.  Mine?  Kind-of dark blondish.  I expected really light hair in the beginning.  Now, I look at myself and I think "What?!  Where did that come from?"  Your hair is so much a part of who you are.  It was quite traumatic to have to shave it off, now I just want to be me again.  It will take so long before I will have something resembling a hair style.  Argh.  Hey--I've got hats!  : )

Friday, August 6, 2010

Missed the Mark

I have to post this picture because I think it is so funny.  I had Kari come last week to help me hang a vinyl saying on my wall.  I've never done it before, she's done lots, so she's the expert.  We found "center", got out the level, marked the wall, then she had me put my end on my mark.  When we pulled the tape off, this is what I found.


It's off!  I totally missed the mark!  How could I have done that?!  Now it is not level and it bugs me when I walk by it.  My life is like that sometimes.  I have this idea in my head of an "ideal" that is darn near impossible to achieve.  Reality is that so often I miss the mark.  I sleep too late, forget to bathe the kids consistently (forget about getting the hair combed!), eat junk food for lunch and frozen meals for dinner, forget to say my prayers, fall asleep in the middle of reading scriptures, etc.


I'm grateful we have each other because we certainly don't have it all together!

We had girls camp last week and I had a blast!  I was called as camp director with one month to prepare, so I didn't have a lot of time to stress over it, just to get it done.  I delegated a lot, thanks to all of you that helped to pull off a great time--our girls are awesome!  Thanks to all the moms who came up for your girls.  Piuta rocks!