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| Gidget and Sharla |
The Red Iguana in SLC, Strawberry Molé enchilada, and these great ladies! I just love these two! We worked in Floral at the church together. We clicked immediately, we laughed constantly, and had SO MUCH FUN together! It was great to see them again!
I went in yesterday for my "every third week" treatment of Herceptin and Perjeta. Cari came with me which is always a treat! I was pretty tired because the night before my arm, neck and shoulders were itching like crazy! That, unfortunately, is a side effect of these two drugs. It's miserable, I slathered on a steroid cream I got from my dermatologist, sprayed on the Benedryl spray and used hydrocortisone as well. Nothing seemed to help. I finally put on my compression sleeve to cover my arm and managed to get to sleep. My being so tired made it hard to carry on the conversation we were having because I was dozing off. 😜 Sorry, Cari! It wasn't you, it was me! We went to lunch and ran a couple errands and had a great talk after my nap, which I was so grateful for.
I was also grateful to get a visit in the infusion room from Annie, my social worker. She's such a great lady! I need to get in to see her this week. I've been contemplating my life as I know it now. When I had chemo every week, my life was very predictable. I didn't really have time to do much except recover from the week before, and then hit it again. Now that I'm every three weeks, I feel like I need to find ways to be productive. It will help that it's going to warm up and I'll start up my business and working at the nursery. There are some projects in the house too. Mat said I could take a sledge hammer to the leaky shower downstairs, even though it will probably be a while before there's funds to replace it. That will be fun! I'm going to start painting too, thanks to my cousin Jen who bought me the first gallon of paint! I have a list of "long term projects" mostly related to our family and my personal history, updating and digitizing scrapbooks--stuff only I can do. I'm currently downloading pictures from the old computer to my Mac so I can organize the scrapbook stuff. I have tons of pictures to scan and a lot of documents to sort through.
I've been daydreaming about writing a book called "My Life Between Scans." I'll have updated CT and bone scans every three months to see what changes, if anything. The month or two before this current diagnosis I was trying to figure out what I wanted to do with my life. I contemplated going back to school, but I couldn't for the life of me think of what I wanted to study. I looked into jobs, finally taking one at J and J nursery. I was diagnosed two weeks after starting that. As I look back, I've realized it was no wonder nothing worked out because Heavenly Father knew what was coming.
My best days are when I have something to look forward to, something to do. I have bad days sometimes, today was one of those. Sometimes I just need to wrap up in my blanket on my bed and cry my eyes out. It's hard to make long term plans when any scan could throw my life into another tailspin. And it's hard to think that the rest of my life will involve cancer treatments. I don't know if I'll ever get to figure out what I want to be when I grow up because this is my life now. Even if I found that magic bullet that cured my cancer, I would still have regular scans and visits to Huntsman for regular follow-up. In my despair this morning, one of my gardening friends, Jenny, texted me to see if I was home. She'd been at Costco and brought us some tomato soup and that delicious parmesan herb bread. I told her I was having a crack up, so it would be Mat that would meet her at the door. In my need, she thought of me and did what she could do to help out. Thanks, Jenny! A little later, when Mat went out to run errands, I went with him and that helped me get out of my funk. It's always nice to clear a few things off the list of things to do and the kitchen counter.
I went in yesterday for my "every third week" treatment of Herceptin and Perjeta. Cari came with me which is always a treat! I was pretty tired because the night before my arm, neck and shoulders were itching like crazy! That, unfortunately, is a side effect of these two drugs. It's miserable, I slathered on a steroid cream I got from my dermatologist, sprayed on the Benedryl spray and used hydrocortisone as well. Nothing seemed to help. I finally put on my compression sleeve to cover my arm and managed to get to sleep. My being so tired made it hard to carry on the conversation we were having because I was dozing off. 😜 Sorry, Cari! It wasn't you, it was me! We went to lunch and ran a couple errands and had a great talk after my nap, which I was so grateful for.
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| This is a statement from our insurance. Almost $31,000 for two drugs, every three weeks. Gosh, I wonder why healthcare is so expensive?! The pharmaceuticals have a strangle hold on the system. |
I've been daydreaming about writing a book called "My Life Between Scans." I'll have updated CT and bone scans every three months to see what changes, if anything. The month or two before this current diagnosis I was trying to figure out what I wanted to do with my life. I contemplated going back to school, but I couldn't for the life of me think of what I wanted to study. I looked into jobs, finally taking one at J and J nursery. I was diagnosed two weeks after starting that. As I look back, I've realized it was no wonder nothing worked out because Heavenly Father knew what was coming.
My best days are when I have something to look forward to, something to do. I have bad days sometimes, today was one of those. Sometimes I just need to wrap up in my blanket on my bed and cry my eyes out. It's hard to make long term plans when any scan could throw my life into another tailspin. And it's hard to think that the rest of my life will involve cancer treatments. I don't know if I'll ever get to figure out what I want to be when I grow up because this is my life now. Even if I found that magic bullet that cured my cancer, I would still have regular scans and visits to Huntsman for regular follow-up. In my despair this morning, one of my gardening friends, Jenny, texted me to see if I was home. She'd been at Costco and brought us some tomato soup and that delicious parmesan herb bread. I told her I was having a crack up, so it would be Mat that would meet her at the door. In my need, she thought of me and did what she could do to help out. Thanks, Jenny! A little later, when Mat went out to run errands, I went with him and that helped me get out of my funk. It's always nice to clear a few things off the list of things to do and the kitchen counter.
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